PregSource® Partners

Eunice Kennedy Shriver National Institute og Child Health and Human Development Logo The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), part of the National Institutes of Health (NIH), leads PregSource. The NICHD aims to ensure that every person is born healthy and wanted, that women suffer no harmful effects from reproductive processes, and that all children have the chance to achieve their full potential for healthy and productive lives, free from disease or disability, and to ensure the health, productivity, independence, and well-being of all people through optimal rehabilitation.

The project also includes many partners, including the following organizations (listed alphabetically):

American Academy of Pediatrics

The American Academy of Pediatrics (AAP) is a professional organization for pediatricians that aims to attain optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. To accomplish this mission, the AAP supports the professional needs of its members, advocates for the highest quality health care for children, promotes pediatricians as the best qualified physicians to provide child health care, and advances child health and well-being.

American College of Nurse Midwives

The American College of Nurse-Midwives (ACNM) is the professional association that sets the standard for excellence in midwifery education and practice in the United States and strengthens the capacity of midwives in developing countries. Its members provide primary care for women throughout the lifespan, with an emphasis on pregnancy, childbirth, and gynecologic and reproductive health. ACNM reviews research, promotes and provides continuing education, and works with organizations, government agencies, and Congress to advance women and infants’ well-being through the practice of midwifery.

American College of Obstetricians and Gynecologists

Approximately 58,000 members comprise the American College of Obstetricians and Gynecologists (ACOG), the nation’s leading group of physicians who provide health care for women. ACOG strongly advocates for quality women’s health care, including improving pregnancy outcomes and reducing maternal and perinatal mortality and morbidity. It also maintains the highest educational standards, fosters the highest standards of practice, and promotes education of its members and their patients.

American Society for Reproductive Medicine

The American Society for Reproductive Medicine is dedicated to advancing the science and practice of reproductive medicine. It pursues excellence in education and research and advocates on behalf of patients, physicians, and affiliated health care providers. The Society conducts and sponsors educational activities for the public and continuing medical education programs for professionals who practice and conduct research in reproductive medicine.

Association of Women’s Health, Obstetric, and Neonatal Nurses

Since 1969, the Association of Women’s Health, Obstetric, and Neonatal Nurses (AWHONN) has been the foremost authority promoting the health of women and newborns and strengthening the nursing profession through the delivery of superior advocacy, research, education, and other professional and clinical resources. AWHONN represents the interests of 350,000 registered nurses working in women’s health, obstetric, and neonatal nursing across the United States.

Centers for Disease Control and Prevention

The primary mission of Division of Reproductive, National Center for Chronic Disease Prevention and Health Promotion Health, Centers for Disease Control and Prevention, is to promote optimal and equitable reproductive health, maternal health, and infant health through research, surveillance, programs, and partnerships. The Division’s portfolio includes work in preterm birth prevention, surveillance of sudden unexplained infant death, maternal death surveillance and response, maternal morbidity prevention, chronic disease prevention in women of reproductive age, and teen pregnancy prevention.

Endocrine Society

Founded in 1916, the Endocrine Society is the world's oldest and largest organization devoted to research on hormones and the clinical practice of endocrinology. Our members are dedicated to the study and treatment of the full range of endocrine disorders, including diabetes, reproduction, infertility, and obesity to name a few. The Society works to foster a greater understanding of endocrinology among the general public and practitioners of complementary medical disciplines. The Hormone Health Network, the Society's public education affiliate, is a leading source of hormone-related health information for the public, physicians, allied health professionals, and the media. With free, online resources from the most advanced clinical and scientific expertise in endocrinology, the Hormone Health Network helps patients and health care providers have more informed discussions about hormones and health.

Genetic Alliance

Genetic Alliance is the world’s largest nonprofit health advocacy organization network, with more than 1,200 disease-specific advocacy organizations and thousands of universities, private companies, government agencies, and public policy organizations. Using new technology and communications strategies, the network engages individuals, families, and communities in discussions of health, screening, and diagnosis. Through a range of programs, the Alliance supports informed decision-making during the preconception, prenatal, and neonatal periods and provides information on more than 13,000 conditions and on thousands of support groups and foundations.

Lamaze International

Lamaze International is a nonprofit organization that advances safe and healthy pregnancy, birth, and early parenting through evidence-based education and advocacy. It serves as a resource for new mothers on what to expect and what choices are available during the childbearing years. Lamaze education is based on the best, most current medical evidence available and built on healthy birth practices that help millions of pregnant women—working closely with their families, health care providers, and Lamaze educators—to achieve safe and healthy pregnancy outcomes.

March of Dimes

March of Dimes—a national, not-for-profit, voluntary health agency—focuses on improving the health of babies by preventing birth defects, premature birth, and infant mortality. March of Dimes supports programs of research, community services, education, and advocacy to save babies, help mothers have full-term pregnancies, support research on problems that threaten the health of babies, and offer information and comfort to families. The March of Dimes accomplishes its work through its volunteers and its network of chapters in every state, Washington, DC, and Puerto Rico.

Health Resources and Services Administration

The Maternal and Child Health Bureau (MCHB), within the Health Resources and Services Administration, improves the physical and mental health, safety, and well-being of the maternal and child health population, which includes all of the nation’s women, infants, children, adolescents, and their families. The MCHB’s programs reduce infant mortality, ensure access to comprehensive prenatal and postnatal care, improve health care for all children, and provide special programs for children with special health care needs.

National Institutes of Health

In addition to the NICHD, which leads the project, several NIH Institutes are involved with PregSource:
  • The National Center for Complementary and Integrative Health uses rigorous scientific investigation to define the usefulness and safety of complementary and integrative health interventions and their roles in improving health and health care. This includes increasing the Center’s understanding of “real world” patterns and outcomes of complementary and integrative health approaches and developing effective, practical, personalized strategies for promoting health and well-being.
  • The National Heart, Lung, and Blood Institute provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives.
  • The mission of the National Institute of Environmental Health Sciences is to discover how the environment affects people in order to promote healthier lives. This includes understanding the health impacts of environmental factors during pregnancy to facilitate prevention and reduce the burden of disease that may result from exposures during this window of susceptibility for both mother and child.
  • The National Institute of Nursing Research is interested in research with women, children, and families, including studies on reproductive health, low birth weight, and preterm birth. The Institute is also interested in research that focuses on improving health outcomes and clinical care through self-management and symptom management, quality-of-life interventions, and cultural and psychosocial aspects of health, including clinical studies that address the underlying biological or behavioral mechanisms related to these foci.
  • The National Institute on Minority Health and Health Disparities leads and coordinates the NIH mission on minority health and health disparities, which supports and promotes biomedical and behavioral research, research training, research capacity, and research information dissemination to improve the health status of racial and ethnic minorities and other health disparity populations. The Institute’s ultimate goal is to ensure that all Americans have the opportunity for long, healthy, and productive lives.
  • The Office of Behavioral and Social Sciences Research, within the Office of the NIH Director, furthers the NIH mission by emphasizing the critical role of behavioral and social factors in health, health care, and well-being. The Office’s mission is to integrate a behavioral and social sciences perspective across the NIH; disseminate behavioral and social sciences research findings; and provide advice to and communicate with the NIH Director, Congress, other government agencies, the research community, and the general public on matters regarding behavioral and social sciences research.
  • The Office of Research on Women’s Health, within the Office of the NIH Director, is dedicated specifically to women’s health and the influence of sex and gender on health and disease within and beyond the NIH scientific community. Office establishes the NIH research agenda for women’s health, co-funds research projects in partnership with NIH Institutes and Centers, and supports career development for women’s health researchers.

Preeclampsia Foundation

The Preeclampsia Foundation, a U.S.-based 501(c)(3) non-profit organization established in 2000, is the nation’s only patient advocacy organization dedicated to hypertensive disorders of pregnancy. The Foundation works to achieve its mission by raising public awareness, providing patient support and education, improving health care practices, and catalyzing research. The Foundation envisions a world where preeclampsia and related hypertensive disorders of pregnancy no longer threaten the lives of mothers and their babies.

Society for Maternal-Fetal Medicine

The Society for Maternal-Fetal Medicine (SMFM) was established in 1977 for physicians and scientists in maternal-fetal medicine, obstetricians with additional training in the area of high-risk, complicated pregnancies. SMFM leads the global advancement of women’s and children’s health through pregnancy care, research, advocacy and education. The Society is dedicated to improving maternal and child outcomes by raising the standards of prevention, diagnosis, and treatment of maternal and fetal disease.

Society for Women’s Health Research

The Society for Women’s Health Research (SWHR®) is a thought leader and pioneer in promoting research on biological differences in disease. A 27-year old nonprofit organization based in Washington, D.C., SWHR is dedicated to improving women's health through science, advocacy, and education. SWHR brings attention to the variety of diseases and conditions that disproportionately or predominantly affect women.

In addition, contractors Leidos Inc., and Invitae Corporation, are also providing support for PregSource.