Frequently Asked Questions (FAQs)

If you have questions that are not included in these FAQs, please contact the PregSource® Coordinators at This email address is being protected from spambots. You need JavaScript enabled to view it.


What is PregSource?

PregSource is a research study that focuses on gathering information. We are asking pregnant women to answer questions about their pregnancies, their health, and their babies’ health. Asking questions and collecting information from pregnant women themselves provides a unique perspective from other studies that rely on doctors or nurses to provide information about their pregnant patients.

PregSource will ask questions about:

  • Your background (such as your age and education level)
  • Your pregnancy (such as your sleep patterns and any nausea/vomiting)
  • Your overall health (such as any pre-pregnancy medical conditions or pregnancy-related problems)
  • Your labor and delivery (such as C-section or vaginal birth and length of labor)
  • Your baby’s health (such as his or her growth and weight gain)

Researchers will examine the information from PregSource participants to identify trends, similarities, and differences and to answer research questions.


What is a research study?

A research study is a project that aims to learn more about a specific topic, in this case, pregnancy.

Many research studies collect information about health, medical care, or medical treatments. There are different types of research studies. PregSource is an observational study, meaning that it is only collecting information (observing the participants). Another type of research study—called a clinical trial—tests whether a new drug or other medical treatment safely and effectively improves patient health. PregSource is not testing any medical treatments.


What is PregSource trying to learn?

Using data collected directly from pregnant women, PregSource is trying to answer questions about normal pregnancy. A lot of research information is available about pregnancy problems and disorders. But we don’t have reliable patient-reported data about pregnancy in general.

Researchers hope to answer the following types of questions using PregSource information:

  • How many women experience morning sickness or nausea? How long does it generally last? How often do they get it, and when during the day does it occur? In what part of the pregnancy is it more common? Does it affect women’s weight?
  • How much does being pregnant affect women’s sleep and energy levels? How do these change over the course of the pregnancy?
  • In women who develop pregnancy problems or complications, are there any warning signs before symptoms arise or the problem is diagnosed?
  • How does pregnancy affect women’s day-to-day lives?
  • What are the unique pregnancy challenges faced by certain women (such as women with physical disabilities)?

What are the benefits of joining PregSource?

By joining PregSource and answering questions like those listed earlier, you can help improve care for other pregnant women in the future.

Although you might not benefit directly from the information you provide, the following functions—available through PregSource—can help you throughout your pregnancy:

  • Track your pregnancy. Adding information to PregSource will help you keep track of your own pregnancy as it progresses. You can also share this information easily with your health care provider.
  • See where you fit. PregSource will show you how your answers and information are alike and different from those of other pregnant women who have answered the same questions. This way, you’ll know how common or unusual your experiences are.
  • Stay informed. PregSource will direct you to trusted, evidenced-based information about pregnancy and health by connecting you with resources from national organizations of heath care experts.

What are the risks of joining PregSource?

There are no known physical risks of taking part in PregSource. But, like any online activity, there is always a risk of loss of privacy. For more detail on privacy risks, please see the Consent form (if you have already joined PregSource, a copy is saved in the My Profile section) or the Privacy Policy.


Who is eligible for PregSource?

PregSource is open to any woman age 18 to 70, who is pregnant and who can agree to participate (consent) for herself.


Who is sponsoring PregSource?

The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), part of the National Institutes of Health (NIH), leads PregSource.

PregSource includes many partners – national organizations and other components of NIH –that offer unique expertise on a broad range of topics related to maternal and child health, pregnancy, and women’s health. Please visit the Partners page for a complete list of organizations that are collaborating on PregSource.

In addition, contractors Leidos Inc. and Invitae Corporation, are supporting many technical aspects of PregSource.


Whom should I contact if I have any questions?

If you have any problems or questions about this study, or about your rights as a research participant, or about any research-related injury, contact the Principal Investigator, Dr.Caroline Signore, at This email address is being protected from spambots. You need JavaScript enabled to view it..

Who will see my information?

In general, only the PregSource Coordinators and the website developers will see your personal information. These individuals are trained to protect patient privacy and keep data secure. PregSource will not share your name, address, and other personal information with anyone else.

In the database, we will replace your name with a code number to hide your identity in the data. Only qualified and approved scientists and researchers will have access to this "de-identified" or "coded" data, meaning they will not have access to your name, address, or other personal information that could reveal your identity. They will study the de-identified information from PregSource to look for trends or common issues that many women, or certain groups of women, may experience. For instance, they might discover that 4,000 out of 10,000 PregSource participants reported having severe morning sickness in the first 3 months of pregnancy. But they won’t know who any of those women are.

PregSource may also share de-identified information with other databases, registries, and data repositories. Combining PregSource’s data with other sources may help us expand our knowledge about pregnancy and could lead to new study ideas and future treatments.

PregSource follows strict rules to protect your privacy, including relevant federal laws and regulations. Generally, only PregSource Coordinators will know that you are part of PregSource and will have access to your information. However, there are a few exceptions to this situation that are listed in the Consent form (if you have already joined PregSource, a copy is saved in the My Profile section).

For additional information, please see the Privacy Policy and Disclaimers and Policies documents available through PregSource.


Will you tell anyone that I am taking part in PregSource?

No. PregSource will not reveal to anyone that you, specifically, are part of the project. We have obtained a Certificate of Confidentiality from the National Institutes of Health to help protect your privacy. This certificate says we do not have to identify you, even if we get a court order or subpoena to do so. The certificate does not mean the government approves or disapproves this research. The certificate cannot be used to resist a demand for information used to audit or evaluate PregSource from the government agency sponsoring the project – the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), part of the National Institutes of Health (NIH).

Although we cannot be forced to release information about your participation in this study, we may have to report information about you to health care providers and/or appropriate authorities if we suspect that you may harm yourself or others. The certificate does not prevent you, or a member of your family, from voluntarily releasing information about you or your involvement in this research. If an insurer, health care provider, or other person gets your written consent to receive research information, then PregSource researchers will not use the certificate to withhold your information.


How secure is my information?

PregSource will maintain all of the information you provide in a safe, secure computer database that conforms with government security requirements, including the Federal Information Security Management Act of 2002 (FISMA, 44 U.S.C. § 3541).

The first step in securing your information is for you to create a username and password that is difficult for someone to guess and that you do not share with anyone. In addition, if you are accessing PregSource using a cell phone or other mobile device, having a passcode on your device will improve security of your data.

Although we are using many tools and practices to ensure the security of information saved in PregSource, we cannot guarantee the security of data on your computer or mobile device. We also cannot guarantee the security of data while it is being sent to the PregSource database from your computer or mobile device. Among the security tools that PregSource uses are: continual security monitoring and anti-viral updates; regular evaluations done by independent, outside security experts; multiple levels of restricted access to certain data (such as names and contact information), user access (for example, a password is needed to enter PregSource), application access (meaning only staff with certain roles can access certain features or audit trails), and hosting services (including firewall and secure sockets layer).

These security features help ensure that your private information is protected. In the event of a data breach (unauthorized access to or accidental release of data), we will let you know about it as soon as possible.


What happens to my information when PregSource ends?

After PregSource ends, we will continue to keep the information you provided in a secure database, and your identity will remain protected. De-identified data—data without participants’ identities or any information that could reveal their identities—from PregSource will continue to be available for researchers to study for many years after the project ends.

PregSource de-identified data may be requested by doctors, scientists, and other interested parties who want to do their own research on pregnancy and/or who want figure out how many PregSource participants may be eligible for other research studies.

The PregSource Operations Committee will review requests for the data to ensure that the researchers meet strict study requirements and have appropriate data security measures in place before any data is shared. All approved researchers must sign a data use agreement stating that they will not use PregSource data as a way to identify any participants’ identities.

Who can "sign" the consent form?

Any woman who is pregnant and older than 18 years of age and who can complete the consent form for herself is eligible. Selecting the appropriate prompts in the consent form constitutes an electronic signature of the form and signifies acceptance of the risks and benefits involved in PregSource.

If you have already joined PregSource, a copy of your signed Consent form is available in My Profile.


What if I change my mind about being in PregSource?

It is your decision to take part in PregSource. You can decide to stop participating at any time: just stop entering information. You do not need to provide a reason for stopping your participation.

To withdraw from PregSource, you can send an email to the PregSource Coordinators at This email address is being protected from spambots. You need JavaScript enabled to view it.. Please specify in your email whether you want to:

  1. Stop answering PregSource questionnaires and stop receiving PregSource email reminders and other messages, or
  2. Remove all of your information from the active database. Please keep in mind that we cannot get back any of your data included in de-identified data that was shared before PregSource received and processed your request for removal.

Is there a cost for joining PregSource?

No. There is no cost to join PregSource. You will also not receive any money for taking part in PregSource.


What if I do not want to be in PregSource?

Joining PregSource is entirely your choice. Deciding to join or not join will not affect your health care.


Do I have to answer all of the PregSource questions?

No. You do not have to answer all of the questions in PregSource. Certain information may be required as part of the registration process, or to continue completing a questionnaire.


How do I join PregSource?

There are a few steps to joining PregSource. The process should take less than 20 minutes.

  1. Select the "Join" button on the PregSource Home page.
  2. Answer the questions about your pregnancy status and birth date to see if you are eligible for PregSource. If you are eligible, the system will display the consent form.
  3. Read and complete the online consent form. The consent form has several sections, and you must complete all of them to consent and create your account.
  4. "Sign" the consent form by selecting the box and/or entering information.
  5. Add your Profile Information, including a username and password.
  6. Select the box to agree to the PregSource Disclaimers & Policies and Privacy Policy.
  7. Enter the security code, as indicated.
  8. Select the "Create Account" Button.

Once this process is complete, we’ll ask you some basic questions for your account profile and then about your general health history. PregSource will also collect information about your background and current pregnancy health, such as: how far along you are in the pregnancy; whether it is a single pregnancy, twins, triplets, or more; the date of your first prenatal visit; total number of prenatal visits; and any diagnoses or test results you’ve received.


How often do I have to enter information in PregSource?

There are no requirements for how often you enter information in PregSource.

However, PregSource data is more valuable for answering scientific questions if it is kept up-to-date throughout your pregnancy. By keeping your information up-to-date important details are not lost over time.

At a minimum, we would like you to update your information at least once a month, and/or whenever there is a change in your health, medication, or symptoms. We will send emails that remind you to update your information.

You can also update your information in My Latest Updates as often as you like. This information, too, is more accurate and useful when updated regularly.


Do I have to provide additional information to PregSource in the future?

We would like you to provide additional information, but it is not required.

Knowing how your pregnancy turned out and learning about your baby’s health will also help us answer additional scientific questions. Therefore, we’ll also ask you questions about your labor and delivery, your recovery, and your baby’s health from after he or she is born up to 36 months of age.

If you do not provide this information, it will not affect your participation in PregSource. Researchers will still study your de-identified data for questions that you did answer.

Why did I receive information about another research study?

We sent you information about another research study because you gave us your permission to do so in your Contact and Sharing Preferences.

Scientists leading other studies may ask PregSource to share their contact information with PregSource participants in hopes of getting more participants for their studies. The PregSource Operations Committee, made up of scientific and technical experts from our Partners, carefully reviews these requests.

If a request is approved, the Coordinators search the PregSource database for participants who:

  1. Gave permission to be contacted in their PregSource Contact and Sharing Preferences, AND
  2. Meet the eligibility requirements of the other study.

If both 1. and 2. apply to you, the Coordinators will send you contact information and other details about the approved study. Scientists conducting the other studies will not get any information about you and will not be able to contact you directly. You decide whether or not to contact the researcher.

Just because you contact a researcher or receive information about another study does not mean that you have to participate in that or any other study. You decide whether or not to participate—It is entirely your choice. You can decide not to participate, and you don’t need to give a reason. And your decision about other studies does not affect your ability to participate in PregSource.

If you do decide to participate in another study, you will need to fill out consent forms and other information specific to that study. Those forms will give details about that study’s risks and benefits.


I really want to be involved in another research study. Does registering for PregSource guarantee I will be included in another research study?

No. Registering for PregSource only means that you are included in PregSource. Research studies have specific reasons for including or excluding people based on the scientific question being studied. Even if you seem like a good match for another research study, it is possible that you might not meet all the requirements for that specific study.

When you contact the researcher leading the other study, he or she will help determine if you qualify for the study.


I don’t want to be involved in another research study. Should I still register for PregSource?

Yes, please register! You can be in PregSource without ever taking part in any other research study. Your information will still be kept secure and confidential, and it will still be useful to us as we try to learn more about pregnancy.

If you want to be in PregSource, but don’t want to hear about other research studies, you can go to "My Profile" and select "No" for the Contact and Sharing Preference on learning about other studies.


If I have given my information to doctors, researchers, studies, clinics, or hospitals in the past, should I still give my data to PregSource now?

Yes. PregSource does not have access to any information you have provided in the past for other studies or projects. All the information you enter into PregSource is specific to this study and will help us learn more about pregnancy.

Need Help?

If you have questions that are not answered here, please contact PregSource® coordinators at This email address is being protected from spambots. You need JavaScript enabled to view it.

To get your username:

  1. Select the "Login" link on the PregSource home page.
  2. Select the "Forgot username/password?" link.
  3. Select the box saying you forgot your username.
  4. Enter the email address you used to set up your PregSource account.
  5. Select the "Send Username" button.
  6. You will receive an email that includes your username and a link to the PregSource Login Page.
  7. Use your username and password to log into your PregSource account.

To reset your password:

  1. Select the "Login" link on the PregSource home page.
  2. Select the "Forgot username/password?" link.
  3. Select the box saying you forgot your password.
  4. Enter your username and the email address you used to set up your PregSource account.
  5. Select the "Send Password" button.
  6. You will receive an email that includes a temporary password and a link to the PregSource Login Page.
  7. Use your username and temporary password to log into your PregSource account.
  8. After logging in, select the "My Profile" link and change your temporary password to one you are more likely to remember.

If you forgot both your username and your password, follow the instructions to recover your username first, then follow the steps to reset your password.

If you complete both sets of instructions and you still cannot access your account, please contact the PregSource Coordinators at: This email address is being protected from spambots. You need JavaScript enabled to view it..

Your password must:

  • Be at least 8 characters
  • Have no spaces between characters
  • Include at least:
    • 1 uppercase letter
    • 1 lowercase letter
    • 1 number
    • 1 symbol (such as !, @, #, $, etc.)

For example: Example@1.

To change your password:

  1. Log into your PregSource account using your username and password.
  2. Select the "My Profile" link.
  3. Select the "Change Password" link.
  4. Enter your current password.
  5. Enter your new password.
  6. Enter your new password again.
  7. Select the "Submit" button.

A message will appear on the page saying that your password was changed successfully.

To help ensure the security of your account, the system will not accept a password that you have used in the last 24 times you changed your password. If you are changing your password, and you enter one that you have used at some point in the last 24 times you changed your password, you will receive this error message.

You will need to enter a new password that meets the password requirements and that you have not used in the previous 24 times you changed your password.

To update your account information:

  1. Log into your PregSource account using your username and password.
  2. Select the "My Profile" link.
  3. Change your information, as needed.
  4. Select the "Submit" button.

The system will return you to your account dashboard page once it saves your update.

For instructions on how to take a questionnaire, please go to the Questionnaire Tips section below.

To add a new pregnancy:

  1. Log into your PregSource account using your username and password.
  2. Select the "My Dashboard" link to view your account dashboard.
  3. Select the "Add a New Pregnancy" link.
  4. The system will present the "About This Pregnancy" questionnaire. Complete the questionnaire.
  5. The system will then present the Due Date and More About This Pregnancy questionnaire. Complete the questionnaire.
  6. Go back to your account dashboard by selecting the "My Dashboard" link. The name of the pregnancy you just added should appear on the dashboard page:
    • After "You are in week ## of pregnancy:" and
    • As your current pregnancy in the "Change My Pregnancy Info" area

If you want to provide information about a different pregnancy:

  1. Log into your PregSource account using your username and password.
  2. Make sure you previously added a new pregnancy to your account.
  3. Select the "My Dashboard" link to view your account dashboard.
  4. In the Change My Pregnancy Info area of the dashboard, select the "Change" link in the "Current Pregnancy" line.
  5. From the list, select the pregnancy for which you want to add information.
  6. The name of the pregnancy you selected should appear on the dashboard page:
    • After "You are in week ## of pregnancy:" and
    • As your current pregnancy in the Change My Pregnancy Information area

 

To help ensure the security of your account, the system will deactivate any account that has not had a login for more than 10 months. You received the message because you have not logged into your account for almost 10 months. If you do not log into your account within those 2 weeks, the system will deactivate your account.

Follow these steps to prevent the system from deactivating your account:

  1. Log into your PregSource account using your username and password.
  2. Select the "My Profile" link.
  3. Select the "Change Password" link.

If the system has already deactivated your account, contact the PregSource Coordinator at This email address is being protected from spambots. You need JavaScript enabled to view it. to have it re-activated.

You can view information you’ve provided to PregSource in several ways.

To see your own information from "My Latest Updates", you must first complete the "Due Date and More About This Pregnancy" questionnaire. Then:

  1. Log into your PregSource account using your username and password.
  2. Go to the "My Dashboard" page.
  3. In the "Data, Facts, & Figures" section, select the "Show Me My Progess Trackers" link.
  4. Specify the category of information you want to view by selecting the appropriate link: Weight, Nausea, Sleep, Physical Activity, or Mood.

The system will display the information you have provided for that category.

To see your answers to a completed questionnaire:

  1. Log into your PregSource account using your username and password.
  2. Go to the "My Dashboard" page. The page displays the names of questionnaires you have completed as "Done" with a checkmark.
  3. Select the link for the completed questionnaire you want to view. The system will display a page that summarizes your answers to the survey questions.
  4. If you want to save or print your answers to that questionnaire, select the PDF icon. The questionnaire with your answers will appear in a separate browser tab. You can then save or print the file using your browser’s controls.
  5. If you want to change one of your answers, select the "Retake this survey" link.

To see how other PregSource participants have responded to questionnaires you have completed:

  1. Log into your PregSource account using your username and password.
  2. Go to the "My Dashboard" page.
  3. Select the "Show Me All PregSource Data" link.
  4. The system will list the questionnaires that you have completed.
  5. Select the questionnaire that you want to view.

The system will display current results for each question and answer option in that specific questionnaire. Please note that these results will change over time as more participants provide information.

The only way to change or update one or more answers in a questionnaire that you have already finished is to retake the questionnaire. To do so:

  1. Log into your PregSource account using your username and password.
  2. Select the "My Dashboard" link to view your account dashboard. This page displays the names of questionnaires you have completed as "Done" with a checkmark.
  3. Select the link for the completed questionnaire you want to retake.
  4. The system will display a page that summarizes your previous answers to the questions.
  5. Select the "Retake This Survey" link.
  6. Answer the questions.
  7. Select the "Submit" button.

The system will display the name of the questionnaire you just completed as "Done" with a checkmark. You can select the title of the questionnaire to view your new answers.

It is possible that you did not completely finish the questionnaire before you left. You will need to retake the questionnaire to ensure the data gets stored properly.

To retake a questionnaire:

  1. After logging in, on the "My Dashboard" page, select the questionnaire you want to complete in the "My Questionnaires" box.
  2. Select the "Retake this survey" link under the questionnaire’s title.

Please be sure not to leave a questionnaire before you see the final "Delivered" or "Completed" page at the end of it. Then on the "My Dashboard" page, the questionnaire’s title should appear in the "My Questionnaires" box under "Done."

Questionnaire Tips

If you have questions that are not included in these Tips, please contact the PregSource® Coordinators at This email address is being protected from spambots. You need JavaScript enabled to view it..

What if I don’t want to answer a certain question?

Please answer as many of the questions in each questionnaire as you can, so that we can get as complete a picture of pregnancy as possible. If you don’t want to answer a certain question, select “Prefer not to answer.”


What if I don’t see an answer that is appropriate for me?

If you don’t see an answer option that applies to you, or you don’t know the answer to a question, for most questions you should be able to select either:

  • Unsure,
  • Don’t know, or
  • Other and type in your answer.

What if I need help answering a question?

PregSource questionnaires are not quizzes. You are welcome to ask other people for help to complete a questionnaire.

Please select the “Next” button at the bottom of each page to move to the next page in a questionnaire.


Why does the Back button in my Internet browser not work?

To better track your answers, we’ve temporarily disabled the “Back” button in your browser while you are in the middle of a questionnaire – it should work again once you have completed or closed the questionnaire. This should not affect how it works on other websites.


If you select your browser’s back button, a message will ask if you:

  • Want to change your answers? Select “OK” and start the survey over.
  • Want to keep the answers you’ve given and keep going? Select “Cancel” and complete the survey.
  • Want to see how you answered a previous question? Select “Cancel” and complete the survey. Once completed, you can review all of your answers.

If you are still on the same page as the answer you want to change, you can change your answers to questions on that page:

  • Dropdown lists.
    1. Select the dropdown arrow to display the entire list of answer options.
    2. Select the appropriate answer, or select the empty space at the top of the list to leave the answer blank.
  • Checkboxes.
    1. Selecting the answer option you don’t want will deselect or uncheck a checkbox.
  • Radio Buttons (answers with open circles next to each item).
    1. Select the button/circle for the answer you want. This should clear any other answer option you previously had.

How do I change multiple answers in a questionnaire I have already completed?

To change multiple or all your answers in the questionnaire, you can retake the questionnaire:

  1. Login to your account.
  2. On the My Dashboard page, select the questionnaire that you want to change.
  3. Select “Retake this survey”.
  4. Complete the questionnaire as you normally would. When you select Submit at the end of the questionnaire, your new answers will replace your old answers for that questionnaire.

If I leave before finishing a questionnaire, how do I get back to it later?

You can come back to complete a questionnaire later, but unfortunately, you will need to start it from the beginning again.

  1. Login to your account.
  2. On the My Dashboard page, select the questionnaire you want to complete.
  3. The questionnaire will start again from the beginning.

Can I download or print my answers to a questionnaire?

Yes, you can download your answers to a questionnaire that you have already completed as a pdf file or print it out.

  1. Login to your account.
  2. On the My Dashboard page, select the completed questionnaire you want to download or print.
  3. Select PDF icon (pdf icon) below the questionnaire title. Your browser will open a PDF version of the questionnaire with your answers noted.
  4. Use your browser’s tools to download or print the file as you would for any PDF file.